Discharge Planning Meeting

We have kept fairly quiet as to what has been happened the last week and a half because we knew that there could be set backs and changes made..

The different departments have been contemplating discharging Dylan for a while now we have had a relatively stable period. They think it would be better for his rehabilitation and recovery to be at home and just returning for his chemotherapy treatments or if there is more lung issues.

This made us very nervous at first as the last thing I want is a repeat of the 10th of February but then we also want Dylan home.. I am sick of living at the QMC and my children being apart.

We had a discharge planning meeting for Dylan on Friday, this included all the departments here at the hospital as well as the different community care teams that will take over Dylan's care whilst he is at home. He will have to go back to the QMC for his chemo weekly and if his blood counts fall too low or he gets an infection but otherwise he is now safe to come home..

So the plan was Saturday and Sunday to take him out first thing in the morning and not go back until bedtime, then today to take him home!! All we've got to do is phone them Tuesday morning to let them know he is fine and it went smoothly then we are just back as an outpatient!

I'm not naive enough to think that this is the end of it.. there may still be more chest drains needed but hopefully we are through the worst of it and are kicking this disease in the a**! 

We are still waiting on a confirmed long term chemo plan but we should get that at clinic on Friday fingers crossed..

I am SO proud of my gorgeous boy!