We started the ball rolling for home oxygen, Dylan cannot leave the hospital grounds without his own oxygen supply. This is for his safety but also his rehabilitation process so he can continue to build up his muscles and strength without getting out of breath. We also have requested a wheelchair for him from Derbyshire Wheelchair Services so we are waiting to hear back from them.
In the afternoon a magician came to see Dylan which he really enjoyed!..
We had lots of fun before bedtime playing 'magic wand' and he had an Echo done of his heart which he did not like much, so he was very tired out in preparation for his sleep study..
This morning we went back to the gym with physio and did a good 45 minute session and he coped very well with this. He also did some crafts this once we returned from the gym and got glitter everywhere!! Unfortunately we didn't hear anything about either his own oxygen supply or the wheelchair but after some discussion it was decided Dylan was allowed to the duck 'pond' in the hospital grounds with a nurse escort. He used the ward's oxygen and wheelchair for this excursion. Unfortunately poor Mummy missed the fun as it was my night to pick Bryce up from school..
As of 4pm yesterday we officially reached 2 weeks with no chest drains, this is infact the longest period that Dylan hasn't had a single drain in since he first became poorly at Christmas.. hopefully this is because the disease is slowing down but we are still awaiting the CD25 results which I pray bring good news.
Not everybody gets good news on an Oncology ward though and my heart goes out to those parents the most of all today <3
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