Thursday 21 January 2016

Answers Pt.1

Fast forward to almost two weeks later and Dylan's lung had healed enough to do a CT scan. This in itself was risky as we knew his lungs were 'abnormal' and that another General Anesthetic would risk more difficulties, but the decision was taken that the benefits would out way those risks...

Now imagine the sight you would see if you looked at the lungs of a 50/60 year old smoker.. Dylan's were worse! His lungs were both covered in damaged tissue "cysts" called bullae which burst thus causing the collapsed lung.

Official diagnose part one.. Bullous Lung Disease but since they have no idea what caused it that is only a part answer..

Blood tests were taken and sent off to Sheffield for Genetic testing, as clearly Dylan is not a smoker and neither are we! His condition is almost unheard of in non smokers never mind in children, so he is somewhat of a medical mystery. With no other signs or symptoms we simply had to wait for the Genetic testing which can take months. So on January 7th, convinced his lung was all healed we were sent home with emergency instructions just 'in case' his lung collapsed again within the next few months whilst awaiting answers.

We enjoyed a lovely weekend celebrating Daddy's birthday and having a proper 'Christmas Day' with all the family...

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