Smiles & Speech

This morning he smiled for the first time since his seizure, not even a drug induced smile but a proper Dylan cheeky smile at Daddy and he recognised and said 'Bryce' when I was going through photographs on my phone! He also said 'don't know' when he was getting upset and we asked what was wrong. We have also had a lot of 'yes' and 'no' responses to questions and more smiles throughout the day.

He is on a lot of medication to control his drug withdrawals, he is on Diazepam and Oramorph for the opiate withdrawal plus Clonidine and a few others if he needs them. Yesterday he had his left chest drain removed and his catheter and today he had the lower right chest drain removed so we are now down to just the one. He is very weak and has lost a lot of weight so he has very little energy and cannot move much so we will need to work very closely with the physiotherapists. He is still not eating but he is having high calorie liquid feed via his ng tube so hopefully this will help him.

This next week or two will be very slow and tough but hopefully we will start to see him become more like his usual cheeky self as time goes on and the drugs get weaned down, I'm just so glad to actually be at this point after such a dreadful Easter..