When we arrived on the ward this morning they were just about to phone us.. he was critical again and we were told effectively to prepare ourselves. We phoned my parents and asked them to keep Bryce off school and come to us incase we had to say our goodbyes or we got transferred elsewhere for Ecmo as a last resort...
However, the little terror had other ideas and stabilised by the time they arrived..
Most of the day he has remained stable, chemo was started and they reduced some of his drugs. His catheter stopped working and they had to replace it during which he woke up so they had to resedate him to continue..
We went for some dinner and whilst we were gone they turned him (to prevent bed sores) and again he woke up and starting coughing and resisting the ventilator which caused him to desaturated and his CO2 to creep back up..
Once sedated he settled down within half an hour to an hour..
We have just left him for the night, I got no sleep last night and feel very unwell today, I just pray he remains stable overnight and that when they turn him again at 3am it doesn't undo any progress..
He is such a little fighter but the problem is at the moment he doesn't need to fight, he needs to relax and heal and let the machines help him.. not wake up and interfere!!
Praying, praying.. praying to whoever will listen right now..
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